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There is a great desire for the exchange of these experiences, the sharing of successes, as well as news about drug advances and the latest therapies. Connect with us via our social media sites to tell your story. You can subscribe to Partners in Discovery, our CF research newsletter.

The research section of our site will keep you up to date on the latest studies and bench-to-bedside therapies at Hopkins. On our People pages we’ll tell you about our CF faculty and staff, from physicians and nurses to nutritionists and therapists, who work with you each day to fight CF and improve your quality of life.

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system. She said this was the first time anyone had used the Canadian Cystic Fibrosis Registry, of which she is the director, to examine outcomes following lung transplantation at a national level in Canada.

A picture tells what a thousand words cannot, especially when it comes to CF tests like mutation analysis and nasal potential difference.

Cystic fibrosis can be a socially isolating disease.

A., NCC, LMHC Patient Advocate Dating and intimacy can be both desired as well as confusing, or even become quite complicated to navigate; certainly when trying to determine how or when to handle discussing cystic fibrosis with your new partner.

Telling people you have CF is a personal choice, and you actually do not have to disclose it to every person you meet.




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